Exploratory Tools for National Children’s Study Data
Presentation Type
Event
Abstract
The National Children’s Study Archive is an information, data, and sample repository for the National Children’s Study, designed to make data and samples freely available for scientific research, with an approved research request. The study, which was active from 2009 to 2014, collected data and samples from over 12,000 mothers, fathers, and children across the US at 40 study locations. These participants are currently represented by nearly 14,000 variables, over 200,000 biological samples, and over 4,000 environmental samples in the Archive. In order to facilitate meaningful evaluation and consumption of this wealth of data, the Archive has developed new exploratory tools. The Protocol Browser allows users to flow through the visit progression and visit instrumentation and identify available study datasets. The Participant Explorer allows users to investigate study participation by participant type (woman, child, father), demographics (e.g., education level, marital status), and data collection point. The Sample Explorer allows researchers to use demographics and study visit information to explore the available biological (blood, hair, nails, saliva, urine, vaginal swab, breast milk, cord blood, meconium, and placenta) and environmental (air, dust, water) primary and derivative samples that were collected from a subset of NCS families. Both the Participant and Sample Explorers provide researchers with the sample sizes available that fit the types of participants or samples of research of interest. The Variable Locator allows users to search the available NCS datasets for questions and variables of interest, returning specific data elements available. With these research tools, researchers targeting unique populations and topic areas can quickly establish if a particular topic area is represented in NCS data and samples. Once identified, researchers can use the Archive’s proposal submission and review process to begin using NCS resources to pursue their scientific objectives.
Start Date
2-12-2018 12:00 PM
Exploratory Tools for National Children’s Study Data
University Student Union: Volstorff A
The National Children’s Study Archive is an information, data, and sample repository for the National Children’s Study, designed to make data and samples freely available for scientific research, with an approved research request. The study, which was active from 2009 to 2014, collected data and samples from over 12,000 mothers, fathers, and children across the US at 40 study locations. These participants are currently represented by nearly 14,000 variables, over 200,000 biological samples, and over 4,000 environmental samples in the Archive. In order to facilitate meaningful evaluation and consumption of this wealth of data, the Archive has developed new exploratory tools. The Protocol Browser allows users to flow through the visit progression and visit instrumentation and identify available study datasets. The Participant Explorer allows users to investigate study participation by participant type (woman, child, father), demographics (e.g., education level, marital status), and data collection point. The Sample Explorer allows researchers to use demographics and study visit information to explore the available biological (blood, hair, nails, saliva, urine, vaginal swab, breast milk, cord blood, meconium, and placenta) and environmental (air, dust, water) primary and derivative samples that were collected from a subset of NCS families. Both the Participant and Sample Explorers provide researchers with the sample sizes available that fit the types of participants or samples of research of interest. The Variable Locator allows users to search the available NCS datasets for questions and variables of interest, returning specific data elements available. With these research tools, researchers targeting unique populations and topic areas can quickly establish if a particular topic area is represented in NCS data and samples. Once identified, researchers can use the Archive’s proposal submission and review process to begin using NCS resources to pursue their scientific objectives.